This story was originally published by ProPublica.
by Jennifer Berry Hawes and Jennifer Smith Richards, ProPublica
It’s after 6 p.m. by the time Angela Johnson hurries home from work. Her 12-year-old daughter, Amelia, is at their house outside of Pensacola, Florida, with a nurse trained to care for medically fragile children. Amelia, who was born with a rare genetic anomaly, has endured many surgeries and requires a brain shunt and a feeding tube.
The nurse starts caring for Amelia as soon as a bus from the public school drops her off. Johnson loves much about the school. But as a physical therapist, she also recognizes its limitations. The district’s physical and occupational therapists have to travel from school to school. The classroom teacher can become overburdened.
For all of Amelia’s life, Johnson has had to fight for the education and the school resources her daughter is entitled to receive under federal law. It has exhausted her.
Two years ago, she thought she’d found a better option for Amelia when she learned Florida has a state-funded voucher program for children with disabilities. She jumped at the promise of “school choice.” The program, the largest of its kind in the country, channels taxpayer dollars into accounts that parents can use to pay for private school tuition and other education expenses.
Johnson envisioned a private school with smaller classes and more one-on-one time with trained staff, a place where she didn’t have to battle for every minute of therapy her child required. She imagined Amelia learning to cut a straight line and to write her name.
In 2024, Amelia was awarded about $10,500 from the program. Thrilled, Johnson embarked on a weekslong hunt for a private school.
She began scouring school websites, most of which said nothing about services for children with disabilities. She started calling schools, first an upscale Christian one nearby with a strong reputation. It had no nurse trained to care for medically fragile children, so she reached out to several other schools. At first, some said they could help — until Johnson explained that her daughter had a feeding tube, that she couldn’t yet hold a pencil correctly and needed assistance toileting. Then they all said no.
Johnson couldn’t find a single one that provided nurses equipped to care for her daughter’s medical needs. Or teachers trained to educate nonverbal children. Or even a bus ride home.
Therein lies the catch in “school choice” for children like Amelia. Unlike public schools, private ones generally aren’t required to educate students with disabilities. And they often don’t.
The choice wasn’t hers, Johnson realized. It was the schools’. The vouchers “are basically designed to make you go to private school,” Johnson said, “but my kid can’t access private school.”
Johnson returned the money to the state, along with a very stern email.
Voucher programs and the private schools they increasingly fund have proliferated across the country. Yet those schools often reject children with disabilities — the very kids who were used to help sell early voucher programs to lawmakers and the public — for having needs that are too costly, complex or disruptive. That leaves those children with few options beyond the public schools. And as public schools lose enrollment as a result of more and more voucher use, they lose resources that would benefit children who remain, including those with disabilities.
About 3 million school-age children with disabilities live in states with universal voucher eligibility. Florida, one of those states, illustrates how the promise of school choice can be empty for these children.
When children are approved for education savings accounts, a voucher-style program like the one Florida uses, states often put public money into accounts parents can use to pay expenses like tuition. If families can’t find a private school and don’t use the money, it may roll over to another year or, depending on the state, get returned.
About 8% of the $1.7 billion Florida distributed last year through its voucher program for disabled children was returned because recipients — kids like Amelia — were enrolled in public school instead, according to data from the nonprofit that disburses most of the funds. By comparison, just 1% of money in the state’s program open to all students was returned for the same reason.
Florida is one of three states where ProPublica obtained data allowing us to make such comparisons.
Louisiana, which launched an education savings account program in the 2025-26 school year, delivered $43.1 million to parent-controlled accounts. Overall, 6% was returned because the families didn’t spend the money, state data shows. But among students with disabilities, that rate was far higher at 30%.
In Texas, data is still coming in for the first year of its $1 billion voucher program. But so far, students with disabilities are opting out of using the money at slightly higher rates than all other students.
Though families return the money for multiple reasons, many have indicated they did so because they couldn’t find suitable private schools that would enroll their students.
“Families are at the mercy of the schools — and schools choosing their kid — versus the other way around,” said Chris Roe, director of state policy at the Council of Parent Attorneys and Advocates, a national association working on behalf of children with disabilities.
Today, at least 18 states have voucher-style programs with universal eligibility or are phasing them in. Florida eclipses them all. More than a half-million Florida schoolchildren — roughly 1 in 6 — use a voucher today. When lawmakers opened the state’s voucher program to all children in 2023, two-thirds of the newly enrolled students were already attending private schools.
Yet private schooling often remains out of reach for children like Amelia, the children lawmakers once used to gain a toehold for future voucher expansions. They shared disabled children’s compelling stories, named legislation in their honor and created some of the nation’s first statewide voucher programs specifically for these students. They started in Florida.
Illusion of Choice
In 1999, an unassuming man wearing glasses and a lavender tie stood before his colleagues in the Florida Senate to champion a bill that would change the trajectory of American education. John McKay, a Republican, wanted to give parents of children with disabilities a chunk of taxpayer money to pay for private school tuition.
McKay pointed to his own family’s experience. Public schools had failed to meet the needs of his daughter, who had significant learning disabilities. He and his wife could afford to send their daughter to a private boarding school, but not all parents had that option.
“We’re alienating parents,” McKay argued. “I’ve been alienated by the public system when I was told I didn’t have any choices with regard to my children.”
The McKay Scholarships began as a pilot program — the nation’s first voucher system specifically for students with disabilities. Lawmakers soon expanded it, creating the nation’s first statewide voucher program for this group of children. Ohio followed Florida’s lead, then Utah and Arizona and Georgia and, later, Louisiana and Oklahoma and others.
Across the statehouses, politicians stressed one sentiment: choice. Parents would no longer be tethered to their local public schools and could choose where to send their children.
The programs have since helped thousands of children with disabilities move to private schools, including those designed to meet their unique needs. But for many children, especially those with more severe disabilities or who live in areas where few if any private schools operate, the promises of choice were never realistic.
More than half of Utah’s counties have no private schools that take its vouchers for students with disabilities. In Georgia, 71% of counties have none. And in Louisiana last year, among about 350 private schools, only 14 reported enrolling a single child with a disability. Eight of those admitted five or fewer such students.
Even in Florida, with its urban centers and roughly $5 billion voucher programs, ProPublica found that more than a dozen counties have no private schools that serve kids with disabilities or have only one school with limited offerings. Our analysis of state data also shows that more than half of Florida’s private schools say they do not serve students with any type of disability.
“It’s touted that this program is an equalizer, and then people have choice,” said Jinny Kim, managing attorney at the Disability Rights Education and Defense Fund, a national civil rights and policy nonprofit that advocates for people with disabilities. “But then if you really look at the details, it’s not actually how it happens.”
Toehold Strategy
As politicians debated those first voucher programs for children with disabilities, a common refrain echoed across statehouse chambers: The plans were just small programs for a specific group of students.
Behind the political scenes, a different message spread. As Arizona adopted its first program for children with disabilities in 2006, Clint Bolick, then president of the advocacy group Alliance for School Choice and now a justice on the Arizona Supreme Court, wrote an essay entitled “Toe-Hold Strategies.” Voucher advocates, he wrote, were “acting smarter,” pushing smaller programs geared toward specific students whose needs were harder for politicians to oppose.
Indeed, following those wins, lawmakers across the country opened the floodgates, often to all or most comers, expanding voucher-style programs into a $10.6 billion tide of public money.
Today, two-thirds of states have some kind of voucher-style program on the books. These programs mostly serve a very different population of students than the early ones did. Most current voucher recipients don’t have disabilities, nor do they need to hunt for a private school that will enroll them. They were already in private schools when they tapped this new windfall.
North Carolina state Sen. Lisa Grafstein, a Democrat and a civil rights lawyer who advocates for people with disabilities, opposes her state’s voucher system, which is now open to all students. “The thing that genuinely infuriates me,” she said, “is when people with disabilities are used as pawns.”
Failure to Address Access
Two decades after states began adopting vouchers for children with disabilities, lawmakers have done little to improve access to private schools for them — even as they have created programs open to all comers. Most legislatures haven’t required private schools that take this public money to accept even a few kids with such needs. Nor have they created effective incentives to help operators open more specialized private schools, which can be costly to run.
“Getting the government involved in private schools isn’t the answer,” said former West Virginia Delegate Amy Summers, a Republican who played a central role in creating her state’s universal voucher-like program. She thinks competition for students will prompt private and public schools to better serve children with disabilities.
It’s not that private schools haven’t opened to take advantage of the voucher windfall. They in fact have been proliferating in recent years. And some of these new schools specifically welcome children with disabilities. But most of them do not.
The Pain of Rejection
Parents described private school rejections as “insulting” and “heartbreaking,” especially when school personnel have met the children. But families don’t always need to apply or even call the schools to get a denial. Some websites or handbooks make it clear.
In 2023, Taylor Cordes, a former special education teacher, embarked on what she calls her “personal passion project” to see how many private schools in her home state of North Carolina post such clear rejections. She dug into every handbook she could find for 660 schools and found that only about a third of them indicated they would accept students with even limited disabilities. More than 1 in 10 declared they would not serve such students, she said.
Many families endure deeply hurtful personal rejections in the search for education. Private schools typically decide who to enroll after meeting parents and their children, as Diavonni Jordan, an Atlanta-area mother, learned. Her now-8-year-old son, Jamir Souders, has ADHD. When he was suspended multiple times from his public school and started to get into fights, she searched for an option with smaller class sizes where she thought he would focus and learn better.
A single mother of two, Jordan applied to a local Christian school, then took time off work to visit it. She filled with hope as she toured the well-kept campus and spoke to its friendly staff. But within a week, she opened an email from the school. “The support that we could give in our 1st grade would not be enough for him this year,” it read.
Jordan expanded her search to other traditional private schools. But the verdicts never changed. “Unfortunately — it doesn’t look like we would be a good fit for your family,” another Christian school wrote. For now, with a new school year upon them, Jamir remains in public school.
Mollie Simon contributed research. Mario Ariza and Asia Fields contributed reporting.
Sign up to receive ProPublica’s biggest stories as soon as they’re published, at propublica.org/newsletters/the-big-story.